Bladder cancer is the 5th most common cancer in Canada. There is a lot of clinical research about bladder cancer but little has been published to date about what a patient really experiences when going through a journey with this disease.
Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift towards PFCC. This includes many inititatives such as supporting the creation of the innovative Patient and Community Engagement Research (PaCER) Internship training program.