As PaCER grows we want to share exciting new developments in the world of patient engagement research. This blog will be a forum to share ideas and participate in discussions with others who are passionate about health research by patients, with patients, for patients.
What will be featured on the blog?
Over the coming weeks we'll be starting several series including content in these areas:
- Indigenous Internships - connect with Indigenous communities across Alberta undertaking the PaCER research training program
- Internships - engage with PaCER research training participants
- Projects - learn about innovative PaCER patient-to-patient research projects
- Patient Voice - discover how the patient voice is bringing insight to the search for sustainable health care
- News - stay informed on the latest developments and events from PaCER
What do you think?
We are excited to start building this interactive community here at the PaCER blog. Please leave your thoughts in the comments below, we look forward to hearing from you!
Bladder cancer is the 5th most common cancer in Canada. There is a lot of clinical research about bladder cancer but little has been published to date about what a patient really experiences when going through a journey with this disease.
Engaging patients and families in research and the design of quality improvement is an essential component of Patient and Family Centred Care (PFCC). Alberta Health Services (AHS) has been engaging patients and families to promote a cultural shift towards PFCC. This includes many inititatives such as supporting the creation of the innovative Patient and Community Engagement Research (PaCER) Internship training program.
Concussions are a growing health epidemic among youth. Current concussion research has produced a great deal of knowledge about adolescent experiences of treatment and recovery; however, these studies have focused largely on clinical information and analysis provided by healthcare providers.
We were PaCER Interns from Wellspring, a cancer wellness centre built upon social support who wanted to understand how and why it worked. This is our story of how Salutogenesis changed our initial description of WS into a Salutogenic theory of community wellness.
As PaCER Interns, we realized that we could do research to pry open the lid on a shared but hidden journey through chronic illness. This is our story of how we were able to overcome the biggest barrier of all in patient engagement – seeing ourselves and being seen through our medical experience.
On 14th October PaCER is holding a focus group in Calgary with patients who are bladder cancer survivors.