PaCER Internships 

2012

  • Hiding the pain - experiences of people with undiagnosed joint pain; sponsored by a CFHI grant

  • Gates people face while waiting for Arthritis knee surgery; sponsored by a CFHI grant

  • Oh Canada! Knee replacement - post-surgical experiences of older south Asian immigrants and their families; sponsored by a CFHI grant

2013

  • The Hidden Pathways of Chronic Illness - the study of a cross section of chronic patients and their journey to wellness in spite of health concerns; sponsored by a CFHI grant

  • Cancer survivors and their families at Wellspring - a Calgary-based community wellness community of self-help, programs and services; sponsored by a CFHI grant

2014

  • Transitioning from ICU - a patient and family perspective; sponsored by the Alberta Strategic Clinical Network

  • Experiences of Immigrant women (South American, Russian and Middle Eastern) seeking diagnosis and support for cancer; sponsored by the Alberta Strategic Clinical Network

2015

  • What is it like for young women who go to Emergency Departments with Chest Pain - the different tracks they take; sponsored by the Libin Institute

  • Patient Experience with IBD and clinic services; sponsored by The Calgary Inflammatory Bowel Disease Clinic

  • Early stoke experience before the patient reaches the hospital door as part of project to reduce the time ‘from door to needle’; sponsored by the QuICR - an AIHS Collaborative Research and Innovations Opportunities (CRIO) Team grant

  • What is it like when you realize that you are just not thinking straight - the early experience with mental illness; sponsored by Alberta Addictions and Mental Health Strategic Clinical Network

  • Why do patients decide to become engaged in Health Systems as advisers and researchers; sponsored by the South Health Campus - a leader in patient engagement

  • The rocky road and the gifts when couples manage chronic health concerns at home; sponsored by St. Elizabeth Health Care, Toronto

2016

  • Experiences of people finding their way to manage from crisis to recovery; sponsored by the Alberta Addictions and Mental Health Strategic Clinical Network

  • Experiences of teens after concussion; sponsored by the Integrated Concussion Research program

  • Understanding parents’ experiences with stillbirth; sponsored by the Maternal, Newborn, Child and Youth Strategic Clinical Network

2018

  • The Search for Support: Young Adults and their Experiences Finding their Way with Inflammatory Bowel Disease

  • Storytelling in the Healthcare System: Experiences of Indigenous patients, their family and friends looking for support when cancer is diagnosed; sponsored by AHS Population, Public and Indigenous Health Strategic Clinical Network (PPIH SCN)

  • Your Body, Your Voice: Cancer Screening on the Piikani Reserve, What Works and What Doesn’t; sponsored by AHS Population, Public and Indigenous Health Strategic Clinical Network (PPIH SCN)

  • Sharing Our Cancer Journey Right from the Start: The Experiences of Métis Settlement Families; sponsored by AHS Population, Public and Indigenous Health Strategic Clinical Network (PPIH SCN)

  • When first finding out that a loved one has cancer: The Experiences of Indigenous families and friends; sponsored by AHS Population, Public and Indigenous Health Strategic Clinical Network (PPIH SCN)

  • Understanding Seniors’ Experiences Living with Malnutrition; sponsored by AHS Seniors Health Strategic Clinical Network

  • Understanding the Experiences of Patients and their Companions with Managing a Cardiopulmonary Condition; sponsored by AHS Cardiovascular Health and Stroke Strategic Clinical Network


PaCER Contracts

2014

Understanding Safe Surgery Checklist Experiences of Surgical Patients in Alberta

  • Lead Researchers: Mary Sheridan, Sandra Zelinsky

  • Partner: Surgical Strategic Clinical Network

  • Objective: To explore patient pre-surgical experience of being asked the questions in the safe surgery checklist all hospitals should do immediately prior to surgery.

Palliative and End of Life Care (PEOLC) Provincial Framework: Patient Feedback and Response

  • Lead Researchers: Marlyn Gill, Nathan Owen

  • Partners: Palliative End of Life Pan Strategic Clinical Network

  • Objective: To obtain patient and family feedback on the existing provincial framework for improving palliative and end of life care across Alberta with a view to making it more patient and family centered.

Understanding Patient and Family Experience in the Daily Care of Critically Ill Patients

  • Lead Researcher: Marlyn Gill

  • Partner: Critical Care Strategic Clinical Network

  • Objective: To gather patient and family perspectives of critical care in Alberta as the patient and family component of a larger Alberta Innovates - Partnership for Innovation in the Health System (PRIHS) funded study Reassessing Practices in the Daily Care of Critically Ill.

Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Stage 1 Patient Engagement Research

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partners: The Canadian Institutes for Health Research, The Arthritis Society and Alberta Innovates – Health Solutions

  • Objective: To discover what patients with osteoarthritis think makes for quality care and what services and support they find most helpful.

Understanding How Patients Manage Their Chronic Illness: What Works and How

  • Lead Researcher: Marlyn Gill

  • Partner: WARD of the 21st Century, O'Brien Institute for Public Health

  • Objective: To understand the experience of complex, chronic patients as they manage their multiple illnesses in order to inform a larger project constructing a user friendly interactive web site to facilitate open communication and collaboration among providers and patients as they manage multiple complex, chronic illnesses.

2015

Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Optimizing Centralized Intake for Rheumatoid Arthritis: Stage 2 Patient Engagement Research

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partners: The Arthritis Society Models of Care Catalyst Grant; Alberta Innovates - Partnership for Innovation in the Health System (PRIHS)

  • Objective: To discover the issues RA patients face in accessing and navigating the health care system and what they think is key to a system that is responsive to their RA management needs.

Creating an Optimal Model of care for the Efficient Delivery of Appropriate and Effective Arthritis Care: Issues Faced by First Nations, Metis, and Inuit RA Patients in Accessing and Navigating the Health Care System: Stage 2 Patient Engagement Research

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partners: The Arthritis Society Models of Care Catalyst Grant; Alberta Innovates - Partnership for Innovation in the Health System (PRIHS)

  • Objective: To gather the perspectives of FNMI people with RA on the issues they face in accessing and navigating the health care system and what they think is key to a system that is responsive to their RA management needs.

Meaningful Results for Meaningful Engagement: Enabling Patient and Family Participation in the AHS Seniors Health Strategic Clinical Netowrk: A PaCER Study

  • Lead Researchers: Sylvia Teare, Jean Miller

  • Partners: Seniors Health Strategic Clinical Network

  • Objective: To proactively work with seniors to ensure the priorities and directions of the Seniors Health SCN are informed by their perspectives.

2016

Patient Engagement to Identify Priorities for Shared Decision-making Tools in Cardiac Care: A PaCER Study

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partners: Cardiovascular and Stroke Strategic Clinical Network

  • Objective: To describe patient experiences with acute coronary syndrome (ACS) care and decision-making when admitted to acute care with an ACS event.

Understanding Low Back Pain Patients’ Experience with Family Physicians and Diagnostic Imaging

  • Lead Researcher: Marlyn Gill

  • Partners: Choosing Wisely Canada (Alberta), Alberta Medical Association, and Bone and Joint Health Strategic Clinical Network

  • Objective: To understand non-red flag low back pain patients’ experience with their family physicians. This was part of a concurrent provider-patient study aimed at reducing low return expensive diagnostic imaging and improving the care of non red-flag low back pain patients who would not benefit from surgery.

Understanding Patient Perspectives on Stroke Prevention Therapy Decisions in Atrial Fibrillation

  • Lead Researcher: Marlyn Gill

  • Partners: Libin Institute, The Heart and Stroke Foundation, and the Heart and Stroke Strategic Clinical Network

  • Objective: To obtain information from atrial fibrillation patients to understand how they made their choices with respect to deciding which, if any, stroke preventing medication they would take. The information is being used to develop an interactive computer program with respect to helping physicians and providers decide on a drug.

Enhanced Recovery after Surgery from the Patient Perspective

  • Lead Researchers: Marlyn Gill, Sandra Zelinsky

  • Partner: Surgical Strategic Clinical Network

  • Objective: A study as part of the patient experience component of Enhancing Patient’s Recovery After Surgery (ERAS): Strategy to Transform Patient Care and Maximize Expected Value project.

2017

Your Experience with the Making it Work Program – The Voice of Program Participants

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partner: Dr. Diane Moser

  • Objective: The evaluation of participant experience with the program online modules, group meetings, technology, individual sessions and rehabilitation professionals.

The Patient Experience of Waiting for Elective Surgery

  • Lead Researcher: Marlyn Gill

  • Partner: Surgical Strategic Clinical Network

  • Objective: To add the Patient Perspective of Waiting for Elective Surgery in Alberta to the large Adult Coding Access Targets for Surgery (aCATS).

Patient Perspective on Bladder Cancer Treatment

  • Lead Researchers: Marlyn Gill, Susan Nguyen

  • Partner: Cancer Strategic Clinical Network

  • Objective: To gain bladder cancer patients’ perspective on their treatment pathway with a view to adding this information to a clinical project to improve the quality of the existing bladder cancer treatment pathway in Alberta.

Patient Perspectives and Expectations about Primary Care: occasional users, seniors and those with complex and chronic care needs

  • Lead Researchers: Susanna Kockzur, Marlyn Gill, Romita Choudhury

  • Partner: Health Quality Council

  • Objective: To provide an independent snapshot of how patients see primary healthcare as a system and to hear their outcomes and expectations for primary care.

Breast Cancer Patients’ review of Educational Materials Provided at Diagnosis and Before Surgery

  • Lead Researchers: Romita Choudhury, Laura Wheeler

  • Partner: Cancer Strategic Clinical Network

  • Objective: To identify current breast health education supports that are available to breast cancer patients and understand where and how these resources can be improved.

2018

I Promised We’d Get Help”: The Parents’ Journey. Experiences of Parents and Family of Youth Visiting the Emergency Department with Mental Health Concerns

  • Lead Researchers: Susanna Kockzur, Esther J. Halton, Karina Pintson; Principal Investigator: Svetlana Shklarov

  • Partners: AHS Calgary and Edmonton Zones; Addictions and Mental Health Strategic Clinical Network (AMH SCN); Emergency SCN; Mapping and Planning Support (M.A.P.S.) Alberta Capital Region

  • Objective: To explore the experiences of parents, family and/or significant adult of a youth visiting the emergency department with mental health or substance use concerns.

Understanding Patient Experience With Bladder Cancer in Alberta: "You Have to Beg, Borrow and Steal to Get Information" (see report link)

 https://www.albertahealthservices.ca/assets/about/scn/ahs-scn-cancer-understanding-patient-experience-with-bladder-cancer-in-alberta.pdf

  • Lead Researchers: Susan Nguyen, Marlyn Gill; Principal Investigator: Dr. Nimira Alimohamed

  • Partner: Alberta Health Services Cancer Strategic Clinical Network

  • Objective: To explore the treatment journey experience of bladder cancer patients in Alberta.

Building Partnerships to Improve Care of Early Knee Osteoarthritis Patients

  • Lead Researchers: Jean Miller, Sylvia Teare

  • Partner: CIHR grant

  • Objective: Develop a risk management tool to assist early Knee OA patients manage their disease by increasing their engagement in the care process with their family doctors.

Impact of the Making it Work Program on People with Inflammatory Arthritis

  • Lead Researchers: Jean Miller, Sylvia Teare, Romita Choudhury; Principal Investigator: Dr. Dianne Mosher, Division of Rheumatology, Department of Medicine, Faculty of Medicine, University of Calgary and Co-investigators: Dr. Deborah Marshall, Faculty of Medicine, Department of Community Health Studies, University of Calgary

  • Partners: Arthritis Research Canada, Alberta Economic Development and Trade, Alberta Schools Employee Benefit Plan

  • Objective: To understand the longer term impact of the MiW program on the work and home lives of people with inflammatory arthritis.

Ongoing

  Patient Experience of the New Community Rehabilitation Model of Care

  • Lead Researchers: Jean Miller, Sylvia Teare; Principal Investigator: Tracy Wasylak, Chief Program Officer, Strategic Clinical Networks, Alberta Health Services and Co-investigators: Kiran Pohar Manhas, CIHR-AHS Health System Impact Fellow at Alberta Health Services and Katie Churchill Senior Practice Lead, Allied Health Professional Practice & Education, Alberta Health Services

  • Partners: Community Rehabilitation Teams, Alberta Health Services; Health Professions and Profession Practice; Allied Health Provincial Team, Alberta Health Services

  • Objective: To understand patient experience of the novel Alberta Model of Care in Community Rehabilitation with emphasis on patient experience and perspective on policy and practice tactics aimed to promote patient-centered care.