Our Mission is

To change the role of patients in their health & health care

to bring patient insight to the search for sustainable & effective health care

PaCER organization structure

READ ON FOR A DESCRIPTION OF EACH GROUP

Internal

PaCER Board

Direction and governance - Science,  Education,  Social Enterprise and Partnerships

 

Program Management team

Operations (infrastructure team), Research leads (oversee research contracts), Training Program Mentors and PaCER Director:

  • Day to day operations and Program Development functions for program

  • Communications about PaCER with PaCER graduates and partners


Internship Team

Research advisor and instructor, PaCER Mentors and Curriculum development team:

  • deliver internship training program in partnership with the University of Calgary’s Continuing Education

  • develop curriculum

  • develop training partnerships


PaCER Inc Social Enterprise Business Development Team

PaCERs providing research related supports by contract:

  • contract project servies

  • registry of PaCER graduates

External

O’Brien Institute for Public Health, Cumming School of Medicine,  University of Calgary

  • Research Institute Home

  • Links to health providers and researchers

  • Link to Enterprise and Innovation initiatives through University of Calgary

Community Rehabilitation and Disability Studies, Community Health Sciences, University of Calgary

  • Academic Departmental home

  • Course development and credit options

  • Links to University curriculum development and delivery supports

Strategic Clinical Networks (AHS mandate for health transformation)

  • Formal Health system partner and liaison with Alberta Health systems and services

  • Onboarding of PaCERs within SCN working groups

  • Patient Engagement Research group, PERG for SCN and AHS patient leaders, advisors and researchers

Strategies for Patient Oriented Research (SPOR)

  • National and Provincial Support Units and National team funding

  • Provincial group for Patient Engagement

  • Liaison with Methods and Career Development Platforms

Continuing Education, University of Calgary

  • Delivery of PaCER Certificate Program

  • Blended on-line and in-person adult learner at a distance program


How WE work


Working towards Our Mission

PaCER is working towards the following goals:

  • Reframing the role of “patient” to become a key stakeholder, partner or colleague in health and health care

  • Promoting engagement in personal health and health care

  • Improving the interface between patients and the health care system through engaged research

  • Creating public and health related venues for a collective patient research voice

PaCER shares common ground with many patient-centred initiatives in its focus on meaningful involvement of patients. PaCER is also unique both in its training of patients in qualitative research methods and its approach to the process of co-designing research with patients.  

ACHIEVING our Mission

PaCER shares common ground with many patient-centred initiatives in its focus on meaningful involvement of patients. PaCER is also unique both in its training of patients in qualitative research methods and its approach to the process of co-designing research with patients.   

Patient engagement

  • Advisors are selected because of health experience, background and ability to work as part of the team.

  • Advisors/partners bring their personal experience to the table.

  • Advisors interact to keep the patient perspective in play

  • Invited to work as part of the team or on specific assignments

PaCER research

  • PaCERs graduate from a specific training program with specific competencies to conduct, share, and evaluate research

  • PaCERs bring a collective, research-informed perspective to the table

  • PaCERs are able to suggest potential research areas to explore patient experience

  • PaCERs are paid to conduct research for the committee or team and work with researchers directly on collaborative projects.

All patients advisors and patient engagement researchers focus on the patient experience

All bring expertise in the search for health in the midst of medical concerns. They add the balance of quality of life, personal control and hope and the search for the cause and the cure in medicine.  


Our business model

An innovative model of social enterprise, PaCER Innovates is a research contract unit within the University of Calgary that generates revenue to conduct patient-led research. Through independent agreements with researchers and health providers, PaCER conducts research co designed with patients, signalling new direction and challenging ideas based on patient input. Although our primary service is conducting a complete research from co-design to implementation, our researchers also partner with health organizations on short term engagement project, such as s interviews, focus groups, and surveys.