Our mission is to change the role of patients in their health and health care and to bring patient insight to the search for sustainable and effective health care.

PaCER organization structure

READ ON FOR A DESCRIPTION OF EACH GROUP

Internal

PaCER Advisory Board

Director and co leads in Science,  Education,  Social Enterprise and Partnerships

Program management team

Administration (.5 admin, .2 finance) 5 PaCER leads (oversee research contracts) and mentors, PaCER director and Research advisor

  • Day to day operations and Program Development functions for program. 
  • Communications about PaCER and with PaCER graduates and partners.

Internship Team

Research advisor and instructor, PaCER mentors and Curriculum development/ delivery  contract (.4)

  • deliver internships,
  • credit options,
  • distance delivery,
  • curriculum development
  • training partnerships

PaCERinc Social Enterprise Business Development Team

appointed PaCERs, advisors and board members charged with developingcontract process for research related supports

  •  annotatedlist of supports with cost estimates
  • contact templates
  • registry of PaCER graduates and HR formats

External

O’Brien Institute of Public Health, Cumming School of Medicine,  University of Calgary

  •  Research Institute Home
  • Links to health providers and researchers
  • Link to Enterprise and Innovation initiatives of U of C

Community Rehabilitation and Disability Studies, Community Health Sciences, University of Calgary

  • Academic Departmental home
  • Course development and credit options
  • Links to University curriculum development and delivery supports

Strategic Clinical Networks (AHS mandate for health transformation)

  • Formal Health system partner and liaison with Alberta Health systems and services
  • Onboarding of PaCERs within SCN working groups
  • Patient Engagement Research group, PERG for SCN and AHS patient leaders, advisors and researchers.

Strategies for Patient Oriented Research (SPOR)

  • National and Provincial Support Units and National team funding
  • Provincial group for Patient Engagement
  • Liaison with Methods and Career Development Platforms.

Health Quality Council of Alberta

  • Seconded staff to develop shared interests in Quality Improvement
  • Shared curriculum development related to patient experience analytics

Our Mission

To accomplish our mission, we need to work toward the following goals:

  • Reframe the role of “patient” to become a key stakeholder, partner or colleague in health and health care
  • Promote engagement in personal health and health care
  • Improve the interface between patients and the health care system through engaged research
  • Create public and health related venues for a collective patient research voice

PaCER shares common ground with many patient-centred initiatives in its focus on meaningful involvement of patients. PaCER is also unique both in its training of patients in qualitative research methods and its approach to the process of co-designing research with patients.  

How We Achieve our Mission

PaCER shares common ground with many patient-centred initiatives in its focus on meaningful involvement of patients. PaCER is also unique both in its training of patients in qualitative research methods and its approach to the process of co-designing research with patients.   

Patient engagement

  • Advisors are selected because of health experience, background and ability to work as part of the team.
  • Advisors/partners bring their personal experience to the table.
  • Advisors interact to keep the patient perspective in play
  • Invited to work as part of the team or on specific assignments

PaCER research

  • PaCERs graduate from a specific training program with specific competencies to conduct, share, and evaluate research
  • PaCERs bring a collective, research-informed perspective to the table 
  • PaCERs are able to suggest potential research areas to explore patient experience
  • PaCERs are paid to conduct research for the committee or team and work with researchers directly on collaborative projects.

All patients advisors and patient engagement researchers focus on the patient experience

All bring expertise in the search for health in the midst of medical concerns. They add the balance of quality of life, personal control and hope and the search for the cause and the cure in medicine.  


Our business model

An innovative model of social enterprise, PaCER Innovates is a research contract unit within the University of Calgary that generates revenue to conduct patient-led research. Through independent agreements with researchers and health providers, PaCER conducts research co designed with patients, signalling new direction and challenging ideas based on patient input. Although our primary service is conducting a complete research from co-design to implementation, our researchers also partner with health organizations on short term engagement project, such as s interviews, focus groups, and surveys.